Perspectives and Experiences with Equitable Data Collection in Oral Health

Published 07/21/2025
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Moving Beyond One-Dimensional Data Collection

This article, published in BMC Oral Health, explores how current data collection practices can perpetuate inequities by rendering some groups invisible or misrepresented.  

Researchers from CareQuest Institute and the University of Minnesota conducted qualitative interviews with individuals often excluded from oral health research due to race, ethnicity, language, disability, sexual orientation, and gender identity. Study participants provided suggestions to improve oral health data collection, including:

  • Engage in participatory research practices
  • Understand and respect data ownership
  • Build trusting relationships through collaboration and transparency
  • Allow participants to choose more than one option in demographic responses or write in responses

The findings underscore the importance of moving beyond one-dimensional data collection and adopting methods that capture the complexity of individuals’ lived experiences. The authors write: 

Data collection processes in research inform decision-making and resource allocation . . . incomplete or inequitable data can lead to potentially harmful oral health care and policy-making decisions.”

Read the article in BMC Oral Health (open access)  

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